Now What?

September is a special time in the life of a school teacher. The short summer has faded into the month of preparation that it takes to come back with new ideas, new approaches, reflections on what worked last year, and predictions about what might work this year. Even though I haven’t been in K-12 education for 15 years, I still get these feelings of anticipation. Part of it is living with a very skilled teacher, part is seeking to support teachers through my own work, and part of it is just my DNA–I grew up with teachers who grew up with teachers. But it is a bit weird, the anticipation of school starting juxtaposed with last week’s soft landing from 13,000 feet. And it raises the question of “Now what?,” as it is back to the day to day of dis ease management, and living the narrative of our current place.

I am sure that everyone has experienced the feeling of a massive emotional high, only to have to come back down to earth and do things like wash the dishes and take out the garbage. This is what I have been feeling in the past week, coming off of the high of facing my own low, and then skydiving my way past that fear. Often, coming down after a mountaintop experience has been a crash-landing, but unlike other times, for some reason, there was no crash after this fall. Instead, there was the subtle touchdown, pretty similar to the way I finally came back to earth from my skydive–a swoop, a turn, speed and then a little lift before the final landing. And it is back to dis ease management with the ultimate goal of trying to be a good husband and father, an effective dean, and an engaged person–applying the lessons of the past weeks to the challenges of the present days.

So I don’t feel particularly profound. Rather, I find myself trying to get my head around this seeming dichotomy of beginning and ending. I love the beginnings of the new school year, the anticipation, the belief that anything can go right, and it will. It is one of the real joys of being a teacher, to lick anticipation like it is ice cream, getting to all of it before it can melt away. And yet I also know that I am looking endings square in the face. It was a cool night last night. We put the comforter on the bed, and it is too heavy for me to kick off with my left leg. Does this mean I just lost a point? I don’t like thinking about that, but the thought comes unbidden anyway. No profundity, just reality, if you get my meaning.

One of the things that we have been living with for the past nine months is the need to sell our house. Selling a house is no fun. You are expected to keep the house balanced between comfortable lived in neutrality and immaculate cleanliness. And once you go up on the market, you are at the mercy of the hoped for occasional potential buyer for whom you are making the preparations. You never know if these visitors are curious or serious. If the sale of your house is absolutely essential for you to get on with the next chapter (say a job change or dis ease management) then you really feel the skin you’ve got in the game.

Your ability to move depends upon the ability to sell, and each and every time you vacate the house to the inspection of strangers, there is that irrational hope that this will be the family, the elusive buyers, the unknowns who carry your very fate in the chance that they will see their future in the space that you have made your own and now willingly or not, must give up. It is emotionally exhausting. On the one hand, it is just the envelope of shelter. On the other, it is the home where you made your life, the place where you experienced the love and loves of your kids, and the gathering spot for mourning the death of a parent. Your home is your space and place. The minute you decide to sell your house, you have to box up all of those feelings and associations, and you have to put them far out of reach. It feels like living in no man’s land, a demilitarized zone that is a lot like living with dis ease, because you never know when that next emotional bomb will be lobbed your way.

So we have boxed up the emotions and associations, although I admit that they leak out from time to time, and we are looking ahead to the next step. It is a so called “buyer’s market.” I love how this sounds, like it is easy. Just look at a few places, offer low since everyone will be just grateful for a buyer, close the deal and move. Sounds pretty good! But this is where dis ease has also pushed us around. We would normally research together, go look together, and then decide. Ev has been reconnoitering with our realtor all summer. I visit the promising properties only, conserving energy and feeling a little guilty for not being more help.

There are new variables which we have never even considered before–no stairs, an accessible bathroom, carpeting that isn’t plush, handles that can be leaned on rather than grasped and turned. It needs wide halls and doorways. And of course, with our anticipation of the care needs of a person advancing into ALS, we think about installing transport systems and wheelchair paths. Suddenly, it really isn’t a buyers market at all. Accessibility really makes your buyer’s market pretty inaccessible. I’m not complaining, just noticing.

All of this is to say that I don’t think I have ever experienced a beginning of the school year quite like this. It has complicated things–Ev is back at work, I’m useless after work–and the balance of living in the moment and anticipating the future is easily overwhelming. This is where I really have to kick in the lessons that ALS has taught me. Despair is not useful, but it is normal. When it comes, it does no one any good to deny it is there. It has to be acknowledged, analyzed and deconstructed. This is the time when we have to remind ourselves to take care of ourselves. Ev must exercise, take a yoga class, practice the piano. I must nap, get beaten by my computer at chess, or just sit quietly. In the process, we deconstruct the despair and reconstruct it into motivation and energy for the work that is ahead. I have come to the conclusion that despair is always a potential given when a problem appears unworkable. This realization argues for a different approach, a head adjustment more than a solution. The lesson of ALS is that if you cannot change your circumstance, then adjust your attitude. If I can get myself back to the place where I can analyze and break down the different components of the despair, then I can move past it.

We sold our house ten days ago (although I don’t believe that any house is actually sold until the closing is done and you walk out with a check for any equity you might have in the place). We offered on a place this past weekend only to discover that the association rules allow just one cat. I’m not willing to make a choice there, and so we will need clarification before we move forward. Yesterday, this felt overwhelming. We thought it was unworkable. Today, it feels like another papercut in a long line of papercuts. It just takes way too much energy to live in the fear of the future, even though we need shelter in less than five weeks.

I have an irrational belief that life hands you not so much what you can or cannot handle, but what you are meant to handle. That meaning comes by virtue of being in the place and time of your circumstance, and it neither makes you special, nor chosen. It is just the nature of living. There will always be situations that will test our human abilities to cope well beyond what it is we currently think we can do, and they overwhelm us, or we rise to meet them. ALS really underscores this reality. Dis ease management is predicated on this fact. And guess what, at some point, life, the world and everything else wins. That fact used to scare me. Now it comforts me in its certitude.

So it is a time of beginnings and endings. Anticipation has yet to be broken by the reality of too many kids in the midst of too many kids with very different needs and circumstances and ways of being than when I first came into education. And we are still here, managing the best we can, grateful for the ongoing love and support of friends and family, and actually grateful for the fact that ready or not, we are going to move on from this place to a new place where life will happen. It really isn’t the question, “Now what?” at all. School starts tomorrow. Each day is our next beginning, our “what,” and it is “now” that requires our attention and energy.

And I’m anticipating the next skydive that I bought this week. Happy landings all you teachers, you caregivers and you unsung heroes who manage life into better places! I hope you will experience that swoop, turn, lift and soft touchdown of a great jump into the skies. Now what, in deed!


3 thoughts on “Now What?

  1. Bruce and Ev: I don’t know how it might be possible that you can feel the love we all have for you two. And I mean by “all” the many folk that keep up with your writings, your activities, and the wonderful will power you radiate. While you speak to all of us in different ways, those of us who
    are toward the end of the race for the very last breath feel that you are so very close to us and are grappling with our problems in life as well as your. Thank you so deeply for the thoughts that sustain us and give us strength for another small step that we have been given—one more day to
    feel that wonderful autumn breeze in our faces. You are a touch of wonderment in these fast approaching final days for all us old folks. Thank you once again, dear friends.

  2. Bruce and EV,

    Congratulations on selling your house !!
    One Big Headache out of the way.
    Hope you find a different place which does not demand too many necessary changes.
    Thanks for bringing us along for the ride you are taking.
    It gives my love and support a place to dwell.


  3. As Kat and I prepared to part this morning, I commented on it being the second day back from vacation and the situations being thrust upon us already propelling us beyond pre-vacation stress levels.
    I agree with you that rarely is the question “why” germane. “Why” is because we were meant to encounter these situations. We either rise above them, or let them crush us. I need to remember this when confronted with the futility of sleeplessness and worry over my troubles.
    As always, I enjoy your observations. They help keep we who are temporarily physically able grounded.
    By the way that little lift that you feel before landing is called “rounding out”. And you did it like a pro.

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